Well, I got a pleasant surprise yesterday. Dr. H's (neurologist) nurse called to give me the titration schedule for my medications. I guess talking with Dr. A (neuropsychiatrist) cleared things up for him enough to support me going forward with ETC.
So the next step is to schedule the procedure. I should get that phone call today. Eeek! I am excited and also a little nervous. It's getting real now.
Meanwhile, I called my parents, who are going to be staying with us while I get the first rounds of ETC. My dad will drive me to the procedure while my mom will stay home with the kids. Then they are here to help out, if I don't feel too great afterward (sometimes people have headaches, body/muscle aches and pains, and/or feel lethargic from the anesthesia).
They let me know that it won't work for them to come up until after the week of the 4th of July. That's another almost three weeks from now. When every day seems like an impossible struggle right now, that sound like eternity. I know I can't expect my parents to drop everything for me, but I had hoped they would realize how important this is. But for all I know, they are booked out several weeks anyway.
So, now I wait for the phone call.